Ok so I have tried to write this stupid blog like 3 times and this program keeps crashing. Instead of a really elaborate, detailed update on my dad you will get a Cliff's Notes version. I apologize. I know you have all been in the dark for some time about what is happening to my dad. I can fill you in from about Nov 12 which is when I arrived at my parent's house. We began my trip home by walking an hour a day around Lake Herrick, dining at Five and Ten, visiting nightly over a Manhattan (mine) and a Green Tea (his). This relative normalcy changed quite rapidly as he began falling, speaking more agitatedly, being incoherent/detached at times, and talking a lot about suicide. At a routine nephrology appointment, his doctor was so alarmed by his behavior and mood that checked him into Athens Regional. He spent 4 nights there and they did another MRI. He had the one at Duke at the end of Sept that showed the tumor had returned and was about 3 cm. The one here showed that it was now 9+ cm. In two months. That means that the Avastin and CPT-11 treatments he was receiving (the agressive treatment he always mentioned) had done nothing. Duke University and Northeast Georgia Cancer Care officially stopped treating my dad's cancer on Thanksgiving Day. On Dec 1, he entered St Mary's Hospice. He's been at home and seen regularly by the extraordinary hospice nurses who come at all times of the day to see that he has meds, is bathed, to answer our myriad questions, to bring any little thing that gives my dad comfort. It's a bit odd to make the switch from life-saving medicine to comforting medicine. It's a bit like driving a 2WD car, top speed, up the side of a mountain only to be told halfway up that you can turn around and coast back down to the bottom. It takes a while to forget that you were trying so hard to reach the top. My dad settled into hospice well and for the first ten days we had relatively unchanged days and nights. He was still mostly mobile and we also had tools to keep his quality of life up like the wheelchair (pictured above with his sister, Gerta) and the shower chair, etc. Tuesday night he began complaining of a severe headache. When the Tylenol did nothing and his pain, fear and agitation were rapidly increasing, my mother called Hospice who naturally came right over and administered small doses of Morphine until he could sleep. He said he -amazingly- still had the headache however. He did sleep all night and then all day and then his vitals freaked out and his blood pressure was WAY up then his temp was WAY up and then he slept all day yesterday, not even to take food or water. We were concerned but we gradually got his vitals under control. This morning he began blinking his eyes and squeezing our hands when we asked him to. He also began grunting but not speaking until tonight when he began speaking only slurred German in small 3 word phrases.
We are about to have a house full of visitors from Germany and Texas and South Carolina and I know all of you probably want to communicate with him, too. The best way to do so is to write a blog comment and I will read it aloud to my dad. He is overwhelmed by in-person visitors at the moment and we are hoping to be better able to accommodate guests in the next few days while he gets stronger. Your understanding is appreciated. Your thoughts and prayers are always close to his heart and they help him immensely.
Join us in wishing my dad a peaceful night tonight and a strong day tomorrow.
-Hillary